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Chronic Fatigue Syndrome (CFS) Support Group Resources ▶ Blogs Q & A

Chronic Fatigue Syndrome (CFS)

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The Chronic Fatigue Syndrome (CFS) Support Group

Due to the fact that very little is known about Chronic Fatigue Syndrome, we encourage you to share any and all knowledge you may have on the disorder so that your fellow HelloLife users who may encounter it in the future are better prepared.

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1 Comments
Betty Laluna posted the blog CFS Everyday a Little Death.
Never in my life in this great country, the UNITED States of America did I ever think I'd lose faith in my government, the medical system and my fellow man. The disease known as Chronic Fatigue Syndrome in conjunction with the aforementioned have left me at apathy. It's a sad and sorry place to be. As a child I was taught pride in my country, I pledged allegiance and was taught there was a Constitution...
5/2
- Erin Froehlich said:
  Betty-
  
  As someone that has done some pretty extensive research into CFS, I really do sympathize with what you're facing. You are dealing with extreme fatigue that interferes with your ability to live a full life, that is painful, that is isolating, that is deeply depressing and yet, you are being written off and your struggles are being trivialized. YOU DO NOT DESERVE THAT!
  
  We've advanced so far in medicine and in science that we may tend to think we have everything figured out. But we haven't.
  
  Not even close.
  
  Just because doctors have not yet been able to explain what is happening with patients experiencing symptoms like yours in a measurable way - counting hormone levels, cell counts, ect - that doesn't mean that what you are experiencing is not real. Even if, as some suggest, there IS a mental component to your symptom's cause, it is becoming increasingly clear that what is happening in our minds is nothing to disregard. The smallest changes in our chemistry and wiring can have profound effects. Even our thoughts, beliefs and feelings can result in physical changes to our body. We're beginning to see that our mind and body are far more intertwined than we had previously believed.
  
  But you probably already know all that. What can I really say to your anger, but I'm so sorry that you are hurting and that you're pain has been disregarded? It's not right. It's not deserved. And I hope very much for you and everyone dealing with this thing like you, that our great scientific minds will find a way to give you back your energy and make you feel better soon.
  
  Stay strong, Betty. We're all rooting for you. You have friends here! :)
  
  -Erin5/4
1 Comments
Laura Hogg
Reading this article made me think: is Chronic Fatigue Syndrome really the best name for this condition? It seems like people interpret it as being just fatigue, when it is so much more. Thoughts?
http://www.abc.net.au/local/audio/2012/0…
1/24
- Bri Luginbill at HelloLife said:
  Maybe instead of Syndrome use the word Disorder? 1/31
0 Comments
E.M. Wollof
A major setback in the search for a cause/treatment of CFS:
http://www.webmd.com/chronic-fatigue-syn…10/18
1 Comments
Erin Froehlich
What about M.E.? - A documentary about CFS and the misunderstanding surrounding this illness.
http://www.youtube.com/watch?v=rUBsz4BH6G4
8/16
- Erin Froehlich said:
  Police men went to the house of a 5 year old girl with CFS to try to disprove this diagnosis. They through her into a swimming pool and she nearly drowned! "This illness, they will tell you, doesn't exist in children." said the mother.
  
  WOW.8/16
1 Comments
E.M. Wollof
CFS Research:
http://www.economist.com/blogs/babbage/2…8/2
- Erin Froehlich said:
  "â€œSadly some of the motivation seems to come from people who believe that any connection with psychiatry is tantamount to saying there is nothing wrong with you, go away, you're not really ill," Dr Wesseley told the BBC."
  
  I think they hit the nail on the head with that statement. There's a lot of stigma surrounding CFS. There people are used to being told that there is no good reason for them to be so tired so when they hear that it may be rooted in the mind, they equate that with saying it's not real. People forget that the mind is a part of the body. Problems in the brain are no less real than the heart or lungs.8/16
0 Comments
E.M. Wollof
Interesting reaction to research going on above:
http://www.bbc.co.uk/news/science-enviro…8/2
0 Comments
E.M. Wollof
CDC Chronic Fatigue Syndrome information page:
http://www.cdc.gov/cfs/8/2
9 Reviews
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"The pain is gone." — Marvin
0 Comments
E.M. Wollof
Article on virus associated with CFS:
http://www.nytimes.com/2009/10/09/health…7/1

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