Chronic Fatigue Syndrome (CFS) Support Group Online

The Chronic Fatigue Syndrome (CFS) Support Group

Due to the fact that very little is known about Chronic Fatigue Syndrome, we encourage you to share any and all knowledge you may have on the disorder so that your fellow HelloLife users who may encounter it in the future are better prepared.

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What's New in Chronic Fatigue Syndrome (CFS)

1
Laura Hogg
Reading this article made me think: is Chronic Fatigue Syndrome really the best name for this condition? It seems like people interpret it as being just fatigue, when it is so much more. Thoughts?
http://www.abc.net.au/local/audio/2012/0…
1/24
- Bri Luginbill said:
  Maybe instead of Syndrome use the word Disorder? 1/31
0
E.M. Wollof
A major setback in the search for a cause/treatment of CFS:
http://www.webmd.com/chronic-fatigue-syn…10/18
1
Erin Froehlich
What about M.E.? - A documentary about CFS and the misunderstanding surrounding this illness.
http://www.youtube.com/watch?v=rUBsz4BH6G4
8/16
- Erin Froehlich said:
  Police men went to the house of a 5 year old girl with CFS to try to disprove this diagnosis. They through her into a swimming pool and she nearly drowned! "This illness, they will tell you, doesn't exist in children." said the mother.
  
  WOW.8/16
1
E.M. Wollof
CFS Research:
http://www.economist.com/blogs/babbage/2…8/2
- Erin Froehlich said:
  "“Sadly some of the motivation seems to come from people who believe that any connection with psychiatry is tantamount to saying there is nothing wrong with you, go away, you're not really ill," Dr Wesseley told the BBC."
  
  I think they hit the nail on the head with that statement. There's a lot of stigma surrounding CFS. There people are used to being told that there is no good reason for them to be so tired so when they hear that it may be rooted in the mind, they equate that with saying it's not real. People forget that the mind is a part of the body. Problems in the brain are no less real than the heart or lungs.8/16
0
E.M. Wollof
Interesting reaction to research going on above:
http://www.bbc.co.uk/news/science-enviro…8/2
0
E.M. Wollof
CDC Chronic Fatigue Syndrome information page:
http://www.cdc.gov/cfs/8/2
0
E.M. Wollof
Article on virus associated with CFS:
http://www.nytimes.com/2009/10/09/health…7/1
9
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